Resources for Families

Information, practical guidance, and community support for every stage of the ReNU2 journey.

Newly Diagnosed? Start Here

A reassuring place to begin, with essential information, practical next steps, and guidance for connecting with the ReNU2 community.

What Is RNU2-2?
A medical information guide written for families.

READ THE FAMILY GUIDE

Community & Connection
Connect with other ReNU2 families and find community groups.

CONNECT WITH FAMILIES

Resources & Support
Find trusted organizations, educational materials, services, and practical assistance.

EXPLORE RESOURCES

Coping and Caring for Yourself
Support for navigating uncertainty, advocacy, caregiver stress, and emotional well-being.

FIND CAREGIVER SUPPORT

Preparing for School
Guidance for evaluations, educational planning, accommodations, communication, and school meetings.

PREPARE FOR SCHOOL