Register Your Family

If someone in your family has been diagnosed with an RNU2-2-related disorder, we would love to hear from you. RNU2-2-related disorders were only recently recognized, so every family that registers helps us build a clearer picture of this community.

When you register, we can:

  • Add your family to our community map

  • Send you our newsletter and Foundation updates

  • Connect you with other families, if you would like

  • Let you know about research studies and other opportunities

  • Show clinicians and researchers that this community is organized and ready to work together

Before you start

We ask only for month and year, never an exact date of birth or medical records. Your information will not be shared outside ReNU2 Foundation without your consent.

Registering is not the same as joining a research study. You can decide separately whether to take part in any research.

Start Registration

Have a question, or would you rather talk with someone first? Email us at info@renu2.org.

Not a parent or caregiver of someone diagnosed with RNU2-2? You are still very welcome. Sign up to stay in touch instead.