Stay in Touch

You don't need a diagnosis in your family to be part of the ReNU2 community. Sign up to hear about research, events and ways to help.

This sign-up is for:

• Grandparents, relatives and friends of ReNU2 families

• Clinicians, researchers and genetic counselors

• Supporters, donors and volunteers

• Families who suspect ReNU2 or are waiting for test results

If someone in your family has a confirmed RNU2-2 diagnosis, please register your family instead, so we can include you in our family community.